Archives for “Syndrome”
(Editor’s note: This is a guest post from Holly McCarthy.) Carpal Tunnel Syndrome, or repetitive motion syndrome, was once a malady for only a few. Before the advent of computers, carpal tunnel affected mostly factory workers and warehouse employees who did the same physical tasks over and over. Now that everyone is on their computers [...]
For an informative article about phantom vision, which affects between 10 and 40 percent of people with low vision, read the article on Lighthouse International, “I See Purple Flowers Everywhere: The Many Visions of Charles Bonnet Syndrome” by Lylas G.Mogk,MD, and Marja Mogk, PhD; with Carol J. Sussman-Skalka,CSW, MBA. Do you ever see things you [...]
21 June 2007—(Womenshealth.gov HealthDay News) – Lyrica (pregabalin) has been approved by the U.S. Food and Drug Administration to treat fibromyalgia. It’s the first drug approved in the United States to treat the condition that affects up to 6 million Americans, the agency said Thursday. People with fibromyalgia usually have chronic pain, muscle stiffness, fatigue, [...]
William’s Syndrome Genetic Disorder Center William’s Syndrome Association William’s Syndrome Comprehensive Web site “Different Minds,” by Robert Finn
Turner Syndrome Studies by the National Institutes of Health (NIH), Health & Human Development Turner Syndrome Society of Canada [Canada] Turner Syndrome Society of the U.S. Turner Syndrome Support Society [United Kingdom] Turner Syndrome from the Turner Center, a center for information, counselling and research on chromosome anomalies [Denmark]
Guide to the Diagnosis and Treatment of Tourette Syndrome Tourette Syndrome Association, Inc. Tourette-Syndrome.com Tourette Syndrome Plus
Sjögren’s Syndrome Foundation National Institute of Neurological Disorders and Stroke: Sjögren’s Syndrome Sjögren’s Syndrome article by Mayo Clinic staff "Green tea may help prevent autoimmune diseases", Medical College of Georgia, April 18 2007. Retrieved on 2007-04-20. Sjögren’s Syndrome Research: "Role of MHC Class II Molecules in the Development of Sjögren’s Syndrome in the NOD Mouse"
International Rett Syndrome Foundation (IRSF) NINDS Rett Syndrome Information Page
Diagnosing Restless Legs Syndrome Study (RLS) International Restless Legs Syndrome Study Group Restless Legs Syndrome (RLS) We Move
Prader-Willi Syndrome Association
American Association for Klinefelter Syndrome Information and Support (AAKSIS) Klinefelter Syndrome from the Turner Center, a center for information, counselling and research on chromosome anomalies [Denmark] Klinefelter Syndrome: International Support Groups and links to more information Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families from the National Institutes of Health (NIH), Health [...]
Ehlers-Danlos National Foundation [US] Ehlers-Danlos Support Group [UK] Hypermobility Syndrome Association (HMSA) [UK] Hypermobility forum for people with Marfan, EDS National Marfan Foundation
Fragile X Research Foundation
Accommodation and Compliance Series: Employees with Fibromyalgia Syndrome provided by the Office of Disability Employment Policy, U.S. Department of Labor (.pdf) American Fibromyalgia Syndrome Association (AFSA) funds research for NIH grants to study fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). Arthritis Foundation — Fibromyalgia: "What Is It?" Excerpt from "The Complete Idiot’s Guide to [...]
Alcohol Related Birth Injury (ARBI) Resource Site FAS Community Resource Center Fetal Alcohol Syndrome Fetal Alcohol Syndrome / Fetal Alcohol Effects (FAS/FAE) Legal Issues Resource Center University of Washington School of Law together with the Fetal Alcohol And Drug Unit, Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine KidsHealth for Parents [...]
Cornelia de Lange Syndrome Foundation
Chronic Fatigue Syndrome (CFS) / Myalgic Encephalopathy (M.E.)
Chromosome 18 Registry and Research Society
Asperger Syndrome Coalition of the United States, Inc. Autism Assembly – "a coalition of members of the autistic community who share the common goal of seeking acceptance for those on the autistic spectrum, who aim to educate about autism, and who are not seeking a cure for autism. This is part of the global autism [...]
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