Archives for “Syndrome”

Avoiding Carpal Tunnel Syndrome

(Editor’s note: This is a guest post from Holly McCarthy.) Carpal Tunnel Syndrome, or repetitive motion syndrome, was once a malady for only a few. Before the advent of computers, carpal tunnel affected mostly factory workers and warehouse employees who did the same physical tasks over and over. Now that everyone is on their computers [...]


Charles Bonnet Syndrome (phantom vision)

For an informative article about phantom vision, which affects between 10 and 40 percent of people with low vision, read the article on Lighthouse International, “I See Purple Flowers Everywhere: The Many Visions of Charles Bonnet Syndrome” by Lylas G.Mogk,MD, and Marja Mogk, PhD; with Carol J. Sussman-Skalka,CSW, MBA. Do you ever see things you [...]


1st U.S. Drug Approved for Fibromyalgia

21 June 2007—(Womenshealth.gov HealthDay News) – Lyrica (pregabalin) has been approved by the U.S. Food and Drug Administration to treat fibromyalgia. It’s the first drug approved in the United States to treat the condition that affects up to 6 million Americans, the agency said Thursday. People with fibromyalgia usually have chronic pain, muscle stiffness, fatigue, [...]


William’s Syndrome

William’s Syndrome Genetic Disorder Center William’s Syndrome Association William’s Syndrome Comprehensive Web site “Different Minds,” by Robert Finn


Turner Syndrome

Turner Syndrome Studies by the National Institutes of Health (NIH), Health & Human Development Turner Syndrome Society of Canada [Canada] Turner Syndrome Society of the U.S. Turner Syndrome Support Society [United Kingdom] Turner Syndrome from the Turner Center, a center for information, counselling and research on chromosome anomalies [Denmark]


Tourette Syndrome

Guide to the Diagnosis and Treatment of Tourette Syndrome Tourette Syndrome Association, Inc. Tourette-Syndrome.com Tourette Syndrome Plus


Sjögren’s Syndrome

Sjögren’s Syndrome Foundation National Institute of Neurological Disorders and Stroke: Sjögren’s Syndrome Sjögren’s Syndrome article by Mayo Clinic staff "Green tea may help prevent autoimmune diseases", Medical College of Georgia, April 18 2007. Retrieved on 2007-04-20. Sjögren’s Syndrome Research: "Role of MHC Class II Molecules in the Development of Sjögren’s Syndrome in the NOD Mouse"


Rett Syndrome

International Rett Syndrome Foundation (IRSF) NINDS Rett Syndrome Information Page


Restless Legs Syndrome (RLS)

Diagnosing Restless Legs Syndrome Study (RLS) International Restless Legs Syndrome Study Group Restless Legs Syndrome (RLS) We Move


Prader-Willi Syndrome

Prader-Willi Syndrome Association


Klinefelter Syndrome

American Association for Klinefelter Syndrome Information and Support (AAKSIS) Klinefelter Syndrome from the Turner Center, a center for information, counselling and research on chromosome anomalies [Denmark] Klinefelter Syndrome: International Support Groups and links to more information Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families from the National Institutes of Health (NIH), Health [...]


Hypermobility, Ehlers-Danlos, and Marfan Syndrome

Ehlers-Danlos National Foundation [US] Ehlers-Danlos Support Group [UK] Hypermobility Syndrome Association (HMSA) [UK] Hypermobility forum for people with Marfan, EDS National Marfan Foundation


Guillain-Barré Syndrome

Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Foundation International Guillain-Barré Syndrome information from the Mayo Clinic Guillain-Barré Syndrome information from the NIH National Library of Medicine Guillain-Barré Syndrome information from the NIH National Institute of Neurological Disorders and Stroke


Fragile X Syndrome

Fragile X Research Foundation


Fibromyalgia Syndrome (Muscle Pain)

Accommodation and Compliance Series: Employees with Fibromyalgia Syndrome provided by the Office of Disability Employment Policy, U.S. Department of Labor (.pdf) American Fibromyalgia Syndrome Association (AFSA) funds research for NIH grants to study fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). Arthritis Foundation — Fibromyalgia: "What Is It?" Excerpt from "The Complete Idiot’s Guide to [...]


Fetal Alcohol Syndrome

Alcohol Related Birth Injury (ARBI) Resource Site FAS Community Resource Center Fetal Alcohol Syndrome Fetal Alcohol Syndrome / Fetal Alcohol Effects (FAS/FAE) Legal Issues Resource Center University of Washington School of Law together with the Fetal Alcohol And Drug Unit, Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine KidsHealth for Parents [...]


Down Syndrome

Canadian Down Syndrome Society Down Syndrome Association of Peterborough formerly known as C.H.A.N.G.E.S. (Children and Adults for Normalization, Growth, Equality, and Socialization) Down Syndrome Health Issues Down Syndrome Organizations from Argentina, Australia, Bahrain, Brazil, Canada, Chile, France, Iceland, Israel, Italy, Malta, Mexico,The Netherlands, Nigeria, New Zealand, The Philippines, South Africa, United Kindom, United States Down [...]


Cornelia de Lange Syndrome

Cornelia de Lange Syndrome Foundation


Chronic Fatigue Syndrome

Chronic Fatigue Syndrome (CFS) / Myalgic Encephalopathy (M.E.)


Chromosome 18 Syndrome

Chromosome 18 Registry and Research Society


Asperger’s Syndrome and Autism

Asperger Syndrome Coalition of the United States, Inc. Autism Assembly – "a coalition of members of the autistic community who share the common goal of seeking acceptance for those on the autistic spectrum, who aim to educate about autism, and who are not seeking a cure for autism. This is part of the global autism [...]